My dear family and friends,
I fell to my knees again yesterday, for the third time in the past year. I admit, this time it was out of fear and a bit out of anger.
I ask for your prayers.
My doctor called yesterday and said they have been doing more research on my condition after my dermatology appointment last week.
After I left last week, they weren't satisfied they hadn't found a good answer for me. Their research uncovered a rare vascular disease that all my symptoms seem to fit the bill. They walked me through the symptoms and the future issues if I do have this genetic disease. They talked to me about the life expectancy rates and that only 500 people have this disease in the U.S., so it is rare and would be basically untreatable. It would be more that I could watch for symptoms to help possibly prevent additional aneurysm, and other complications.
I will be working with the Froedtert doctors to have the blood test ordered over the next week or so. The test will be sent to the UW-Washington Seattle Hospital and the results will be 95% accurate. They would not spell the name of the disease for me, they do not want me "googling" it before we know the results of the test. (I think that is better at this time too!) If I do have this disease I will work with a team of Doctors as well as a Genetic counselor for "coping" skills.
After I got off the phone with the Doctor, I asked God , why this continued suffering? why this continued test of my faith? why, why, why?
I then talked with my team leader at work about possibly having to be out for some appointments in the coming week. As we talked, he said to me, "We know and thank God for Doctors. But, we know a different healer, God. And, he is better than any doctor! Thank you, Thank you, Thank you for that reminder! And, thank you to my friend/co-worker for praying with me in her office yesterday after I got the news. The power of prayer is amazing in a time of uncertainty. And, I thank God everyday for surrounding me with people who love the Lord!
So, here I am waiting. Waiting for more answers. Waiting on God's plan.
At 4:10 p.m. today driving home crying. Again, pondering my life, pondering the thought of leaving this earth early, and pondering the thought of leaving my kids behind and on comes this song on the radio. It is from the movie, Fireproof, which I have not seen, but here it is really great.
"While I am Waiting" by John Waller.
"I will move ahead bold and confident. Taking every step in obedience, while I am waiting, I will serve you, while I am waiting. I will worship, while I am waiting, I will not fail, I'll be running the race, even while I wait. I am waiting on you Lord, and I am peaceful. I am waiting on you Lord, I will move ahead bold and confident. I will serve you will I am waiting..."
My promise to myself and my kids is: I am going to do all those things while I wait. While I am waiting on the Lord....
Please take a listen:
http://www.youtube.com/watch?v=Bb7TSGptd3Y&NR=1
I ask for your prayers. For peace in knowing either way. For trusting and not doubting. For knowing his promise, "I know the plans I have for you. Plans to prosper you, not to harm you."
Thank you my dear friends. I'll be back in touch as soon as I have the results.
Love, Claudine
I fell to my knees again yesterday, for the third time in the past year. I admit, this time it was out of fear and a bit out of anger.
I ask for your prayers.
My doctor called yesterday and said they have been doing more research on my condition after my dermatology appointment last week.
After I left last week, they weren't satisfied they hadn't found a good answer for me. Their research uncovered a rare vascular disease that all my symptoms seem to fit the bill. They walked me through the symptoms and the future issues if I do have this genetic disease. They talked to me about the life expectancy rates and that only 500 people have this disease in the U.S., so it is rare and would be basically untreatable. It would be more that I could watch for symptoms to help possibly prevent additional aneurysm, and other complications.
I will be working with the Froedtert doctors to have the blood test ordered over the next week or so. The test will be sent to the UW-Washington Seattle Hospital and the results will be 95% accurate. They would not spell the name of the disease for me, they do not want me "googling" it before we know the results of the test. (I think that is better at this time too!) If I do have this disease I will work with a team of Doctors as well as a Genetic counselor for "coping" skills.
After I got off the phone with the Doctor, I asked God , why this continued suffering? why this continued test of my faith? why, why, why?
I then talked with my team leader at work about possibly having to be out for some appointments in the coming week. As we talked, he said to me, "We know and thank God for Doctors. But, we know a different healer, God. And, he is better than any doctor! Thank you, Thank you, Thank you for that reminder! And, thank you to my friend/co-worker for praying with me in her office yesterday after I got the news. The power of prayer is amazing in a time of uncertainty. And, I thank God everyday for surrounding me with people who love the Lord!
So, here I am waiting. Waiting for more answers. Waiting on God's plan.
At 4:10 p.m. today driving home crying. Again, pondering my life, pondering the thought of leaving this earth early, and pondering the thought of leaving my kids behind and on comes this song on the radio. It is from the movie, Fireproof, which I have not seen, but here it is really great.
"While I am Waiting" by John Waller.
"I will move ahead bold and confident. Taking every step in obedience, while I am waiting, I will serve you, while I am waiting. I will worship, while I am waiting, I will not fail, I'll be running the race, even while I wait. I am waiting on you Lord, and I am peaceful. I am waiting on you Lord, I will move ahead bold and confident. I will serve you will I am waiting..."
My promise to myself and my kids is: I am going to do all those things while I wait. While I am waiting on the Lord....
Please take a listen:
http://www.youtube.com/watch?v=Bb7TSGptd3Y&NR=1
I ask for your prayers. For peace in knowing either way. For trusting and not doubting. For knowing his promise, "I know the plans I have for you. Plans to prosper you, not to harm you."
Thank you my dear friends. I'll be back in touch as soon as I have the results.
Love, Claudine
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